Service User Involvement (Mental Health)

Stories Make us Human

2012-01-06T08:13:00.000Z

In this New Year we will all resolve to do some things better and to stop doing other things completely but how many of us will resolve to tell a good story? Yet it is the ability to tell a good story that separates us out from simply being animals or machines. Paul Ricour identifies the basic construct of narrative as story which includes a beginning, middle and end but we all know that stories are much more subtle than this. While the words narrative and story are used interchangeably I think there is a difference in that narrative is often a collection of stories but here I want to point out the meaning of story as a human construct.

We all see things as they are which may not be the same as each other. We use language to communicate what we see either in words, numbers, music or art. So far a machine could do all of these things and often does in health and social care. Then we use passion to transfer the emotional content of the story either in the writing or the telling. Try telling a child a story in monotone - they will soon lose interest if you are unable to engage them emotionally so that they can understand the characters of the story. A good film or book or piece of music or art will also reach out to us emotionally so that we can recognise or associate ourselves with the characters in the story or song.

In an age of technical rationality (and machines doing everything for us) we are at risk of losing the art of telling stories because they may be ignored as unreliable evidence or even untruths. Once we begin to call stories lies we have lost their essence or passion and fail to listen to what is really going on. They may of course be untrue but the story is what makes each and every one of us human beings trying to communicate our own interpretation of an event. If you ignore the story you ignore the person and what it is to be a member of the human race. We may all be what Arthur Frank terms wounded storytellers but that does not mean that we do not have a story to tell.

Lancashire Care Library

2011-10-16T09:02:00.000+01:00

This is a great library for receiving updates by email on latest research in health care .Some of the publications are free but all have links and can help keep you up to date - without even trying!

The economic argument for more mental health promotion

2011-09-04T08:44:00.000+01:00

This report although only about Wales provides some interesting information on the cost of mental illness in Wales. For example the cost of mental health care amounts to 20% of the healthcare budget which is higher than cardiovascular disease (16%) and cancer (15%). It also provides advice on how we can reduce the "burden of disease" and improve the mental health promotion of children and adults in Wales. The report gives practical examples and reasons to improve mental health care in Wales, which can only be of benefit to the people who live there.

T-E-A-C-H Resource

2011-08-23T10:24:00.000+01:00

I am currently looking at recovery indicators so expect to see a few coming this way over the next few weeks. This one includes some measurement tools of hope and recovery so might be useful now or in the future. Will add to the list of resources too just for good measure;-)

The King's Fund

2011-06-03T15:05:00.000+01:00

This is a useful website for free downloadable publications on the health service and how it is delivered. There is a section that specifically looks as involvement practices and how they can be improved. I keep revisiting some of the documents which tells me that it is a useful resource. I am going to add it to my links section for this reason. In particular The Point of Care section has useful information on improving dignity and compassion.

No Health Without Mental Health Strategy 2011

2011-05-02T09:38:00.000+01:00

The new government strategy for mental health care in the UK is now available with all supporting evidence on their website. There is a lot to read but also an easy read document. Having skimmed through a lot of it (because we already know it) it appears to be promoting the following ideas

mental illness is costing the country a lot of money
people need to be more resilient
people need to be more in control of their health and recovery
early intervention and health promotion may reduce the burden
stigma should be addressed locally
primary care should be more active
people need to be back in work to reduce isolation and improve resiliency/ social support

Much of the above service users and carers have been asking for for some time. there is little attention to involving service users and carers ( it is mentioned once or twice) and there is little talk of emancipation. Although there is some reference to the Equality Act 2010. All in all this document does not say anything that we do not already know in mental health care but it does use some of the above as outcome indicators. This is a start in the right direction, let's hope that the principles and outcomes within this strategy have got some power to improve mental health care provision.

Health is Social Blog

2011-04-15T16:40:00.000+01:00

Just found this great blog about making health care - social care, mainly using micro blogging tools like Twitter. The very generous author (also a nurse) provides us us with 140 uses for micro blogging in health as well as lots more information and presentations. I am going to add this to my links because I think it will be useful to follow how micro blogging can involve service users and carers in health and social care decision making in the future.

Quality or Safety or both?

2011-04-10T08:58:00.001+01:00

I attended a really useful conference yesterday on inter professional learning. There were some useful discussions on safety and quality not being the same thing. Perhaps we are now at the point in our health care system that we need to be talking about safety a lot more and with dwindling budgets, quality a lot less? Some of the main issues are identified below.

Human Factors - that can lead to mistakes are hardly recognised within the quality literature - people make mistakes when they are tired, lack knowledge and support or are simply expected to do too much.

Team working - people do not always learn how to work as a team which involves collaboration and communication at all times. Developing team working skills can therefore prevent mistakes from happening if people feel valued, supported and listened to within a team. This includes peer support workers and carers who are all trying to achieve the same goal- recovery and wellness.

Communication - even if people do not work as part of a team but are more specialised they still need to be able to communicate vital information that can reduce risk and improve safety. Saying it is not my job is not a good reason. Nor is confidentiality but it is important to gain consent before passing on personal information. Signs and symptoms are not personal information but simply your observations of what is/could be happening. Tools can be used here to give exact measurements or an overview e.g. SBAR

Knowledge & Skills - it is difficult to have skills without knowledge but by grouping them together does not mean that they are both the same thing. You need knowledge to decide which skills you should be using so they cannot be used in isolation of each other. For example in order to give medication you must not only know how to give it ( route/dose etc) but also why you are giving it and how it might interact with other substances. Some skills require more complex knowledge than others but all skills require some knowledge and understanding that you must be able to demonstrate that you are competent in. Simply attending conferences or one-off study days will not achieve this and could be unsafe in practice if you do not fully understand the consequences of what you are doing. Most professional bodies require this as a minimum to
be considered safe practice. Educational courses also give 'credit' that you are competent by assessing you at the right level for your knowledge needs. However all professionals are responsible for their own safe practice ( not their managers) and must make it known if they feel practice is becoming unsafe. It can also be useful to identify what you need to know to make it safe. This can be done through clinical supervision or peer evaluation.

Consistency - is perhaps a quality issue that can be related to safety. If practice is different from area to area people will not get consistent care which can lead to mistakes being made. Consistency means following the most up to date guidelines and evidence-based practice and being able to consistently demonstrate that you have done this. This could be used to audit and improve current practice in teams and in our own continual professional / personal development (CPD).

Some useful links for measuring safety in practice where 'how-to'guides may have been created

Patient Safety First
National Patient Safety Agency
Scottish Patient Safety Alliance
1000 Lives Plus -Wales
HSC Safety Forum -Northern Ireland

Service User Voice

2011-03-27T20:37:00.000+01:00

This is a blog by service users on the Community Care journal website. There has been so much going on lately within health and social care it feels hard to keep up with it all. I was looking to see who was blogging about the government reforms and found this site, it looks pretty active so will add it to the links bar.
However following the march against the cuts yesterday I fear that it will be harder to make service user's voices heard. When the politicians are not listening the public cannot be heard.

Whose Story is it Anyway?

2011-01-05T09:57:00.001Z

A recent report published about making narratives effective for changes in practice. This is an easy to read report and gives some ideas about how involvement can be improved - this is one to download and show to as many people as you can.
I have always felt uneasy about leadership and management courses that are supposed to effect change? This report confirms that in saying that it is front-line works who should be empowered to make the difference as they are the ones who have the most contact with patients/ clients - at last!

Can we guarantee compassionate care? - The King's Fund

2010-10-24T09:11:00.000+01:00

Can we guarantee compassionate care? - The King's Fund
No but - this interesting blog provides some ideas for improving compassionate care and preventing compassion fatigue

Involving users in commissioning local services | Joseph Rowntree Foundation

2010-09-27T14:15:00.000+01:00

Involving users in commissioning local services Joseph Rowntree Foundation
A new report but with similar findings to others.
it is about time this was taken more seriously

Mental health - RCN

2010-09-01T08:44:00.000+01:00

Mental health - RCN

Social Inclusion Resource - free at the Royal College of Nursing Website. Provides some useful information and links to current thinking about recovery and personalisation in mental health care and other areas such as learning disabilities, homeless , and the traveling communities. I do wish they would not split groups up in this way, although I recognise that each group may have different needs. It does tend to lead people into thinking that only certain groups have social inclusion needs which can in effect exclude some people.
Social Inclusion is for everybody isn't it?

Emancipatory Practice and Lessons From Geese

2010-08-28T09:36:00.001+01:00

This blog is adapted from the website above but includes their original text with my adaptation in italics

Lessons from Geese ( with some additional emancipatory lessons)

Fact 1

As each goose flaps its wings it creates an 'uplift' for the birds that follow. By flying in a 'V' formation, the whole flock adds 71% greater flying range than if each bird flew alone.

Lesson

People who share a common direction and sense of community can get where they are going quicker and easier because they are traveling on the thrust of one another.

Service user groups provide encouragement, support, care, and understanding in helping people cope with mental illness. For many years this was not encouraged but now some service users have developed groups of their own. However they are often controlled by the budgets of those in power. Any organisation that has particular goals or policies to follow must learn to fly in formation .

Fact 2

When a goose falls out of formation, it suddenly feels the drag and resistance of flying alone. It quickly moves back into formation to take advantage of the lifting power of the bird immediately in front of it.

Lesson

If we have as much sense as a goose we stay in formation with those headed where we want to go. We are willing to accept their help and give our help to others.

It is possible to go it alone in recovering from mental illness but this is more difficult and requires more inner strength and coping skills. Finding people who can provide us with that uplift when we need it is important in beginning and continuing our journey to recovery. Developing relationships with professionals and family/ friends will help us do this - so that we are not flying alone.

Fact 3

When the lead goose tires, it rotates back into the formation and another goose flies to the point position.

Lesson

It pays to take turns doing the hard tasks and sharing leadership. As with geese, people are interdependent on each other's skills, capabilities and unique arrangements of gifts, talents or resources.

Identifying and sharing our skills make coping and managing easier - this is true of any team approach to a task. This means that we need to get to know each other better and before a crisis occurs so that someone can quickly take our place when necessary. Learning to let go and let others take the lead is a strength not a weakness and benefits the whole group. Encouraging people to talk about and identify their strengths and weakness should be encouraged so that they can be recognised an planned for in times of need. (but never used against them)

Fact 4
The geese flying in formation honk to encourage those up front to keep up their speed.

Lesson

We need to make sure our honking is encouraging. In groups where there is encouragement, the production is much greater. The power of encouragement (to stand by one's heart or core values and encourage the heart and core of others) is the quality of honking we seek.

Making is a noise is not just about making a noise but about demonstrating our support for each other. Making sure people are heard and developing a narrative of experiences will provide support for service users who are new to the service and will also develop a strong network of support from existing service users. Writing, talking, playing, drawing and acting are all ways in which narratives can be heard.

Fact 5

When a goose gets sick, wounded or shot down, two geese drop out of formation and follow it down to help and protect it. They stay with it until it dies or is able to fly again. Then, they launch out with another formation or catch up with the flock.

Lesson

If we have as much sense as geese, we will stand by each other in difficult times as well as when we are strong.

We all need support some of the time and in helping each other we can work towards recovery or our goals much more effectively and efficiently .
This includes helping people cope in a relapse / crisis and not blaming them or others for its cause. People get weak or ill and it is our duty to help them recover not abandon them when they are no longer useful to us. This could take some time and patience but is the minimum we can expect from each other if we are to develop emancipatory practice.

Lessons from Geese was transcribed from a speech given by Angeles Arrien at the 1991 Organizational Development Network and was based on the work of Milton Olson. It has since circulated in several organizations across the world.

National Empowerment Centre

2010-08-19T13:46:00.000+01:00

I may have mentioned this site before. It is USA site with updated advice and information. I will add it to the links section so that it does not get lost.

The Triangle of Care

2010-08-16T07:51:00.000+01:00

At last a good practice guide for involving carers in acute mental health care! This has been a long time coming and is a useful resources for ideas in practice on how to involve carers .
It does however provide the dreaded tick list which can lead people into a false sense of security but the auditors love it. Likewise it does not really address the issue of conflict which will inevitably arise around who knows what the best needs of the service user are?
It does not even acknowledge the law that has been around for the last decade on carers needs although there is a little bit about confidentiality.
One recommendation is for training but does not say what this should be and another is for carer champion posts which can sometimes be a dumping ground. A change in values and attitudes is what is needed ( I can hear some staff saying that they will not have the time) and there is a lack of evidence for this within the document.

Oregon State Hospital Museum

2010-08-11T14:38:00.000+01:00

This active blog provides interesting information on objects found at the hospital made famous in the film One flew over the Cuckoos Nest. Records of costs appears to be familiar in many of the old asylums indicting that organisation of resources were a major function. Pity nursing and medical records were not so strictly kept up.

sociology research journal online

2010-08-03T09:46:00.000+01:00

this journal is free online with some interesting if a little complex ideas discussed - not for the faint hearted

The patient will see you now - The Health Foundation

2010-07-06T07:51:00.000+01:00

The patient will see you now - The Health Foundation
This free full text document is really hard hitting but easy to read. It focuses upon the doctor patient relationship but it is generalisable to the wider health care context. Some good ideas/ examples also given.

BBC News - Concerns raised over psychiatric unit admissions

2010-06-23T22:31:00.000+01:00

BBC News - Concerns raised over psychiatric unit admissions
interesting report form Scotland. It appears that service user involvement is not first on the list for the most vulnerable people in mental health care.

How to Celebrate midsummer | eHow.com

2010-06-21T20:47:00.000+01:00

Happy Midsummer's day everyone hope it brings you wealth and love and a a productive year
How to Celebrate midsummer eHow.com

BBC News - Mental health research is 'incredibly underfunded'

2010-06-04T08:22:00.000+01:00

BBC News - Mental health research is 'incredibly underfunded'
This is not news although it is worth reminding people that mental illness costs the country a great deal of money in lost work and taxes. When will the NHS realise that it is not all about chemicals and mechanics but about people.

Will graduate entry free nursing from the shackles of class and gender oppression? | Practice | Nursing Times

2010-06-01T14:32:00.000+01:00

Will graduate entry free nursing from the shackles of class and gender oppression? Practice Nursing Times

Nurses suffer from oppression too!

Mental Health Shop - 100 Ways to Support Recovery

2010-05-31T13:56:00.000+01:00

Mental Health Shop - 100 Ways to Support Recovery

Free down loadable publication with plenty of good advice for professionals and anyone working in mental health. It really does give you 100 ways to change practice and links to other resources. Available from the English mental health charity 'Rethink' Website.

Playing Asylum Seeker | Testimony

2010-05-31T13:28:00.000+01:00

Playing Asylum Seeker Testimony

short video from the Inside Stories project - oral histories of people who have suffered from mental illness

Outcomes Star named in White Paper - Outcomes Star - Outcomes Star

2010-05-20T11:47:00.000+01:00

Outcomes Star named in White Paper - Outcomes Star - Outcomes Star

This seems to be proving a popular tool for assessing mental health recovery. I just hope people do not become too reliant on it though - it could stop people listening to what's important for the client if it is not on the Star. Or worse practitioners might try to fit people into neat boxes or packages just so they can show everyone what good work they have done.

Ethics: The Ethics of Diversity: A Call for Intimate Listening in Thin Places

2010-05-14T18:31:00.000+01:00

Ethics: The Ethics of Diversity: A Call for Intimate Listening in Thin Places

An interesting paper on how listening has little effect if it is not put into action

The vision of recovery today: what it is and what it means for services

2010-05-10T14:41:00.000+01:00

The vision of recovery today: what it is and what it means for services
an interesting update on current thinking on recovery

Peer Support: What Makes It Unique?

2010-04-14T11:29:00.000+01:00

Peer Support: What Makes It Unique?
this is an interesting (online) paper that discusses the approach of peer support - appears to be more evident in the USA than the UK at the moment but that could all change with the personalisation process going on here at the moment

Publications: An evaluation of mental health service user involvement in the reâ€commissioning of day and vocational services - Sainsbury Centre for Mental Health

2010-04-01T09:17:00.000+01:00

Publications: An evaluation of mental health service user involvement in the reâ€commissioning of day and vocational services - Sainsbury Centre for Mental Health

A useful and perhaps timely publication on service user involvement with lots of practical advise - the same old problems keep coming up though and they are around adequate information and role identification. Asking people what they expect from involvement is not the same as helping them to prepare for the trials and tribulations that they will meet along the way.

2010-03-13T09:17:00.001Z

New book - all you ever wanted to know about care planning! For sample chapter go to http://ping.fm/5P4VV

2010-02-16T10:39:00.001Z

Radio 4 9.30pm today, heard this story this morning about living with BPD. http://ping.fm/3jgvM
#TwitterEd

2010-02-13T11:12:00.001Z

5 ways Twitter can save your life http://ping.fm/TysBT TwitterEd

2010-02-12T10:14:00.001Z

Teaching and learning is exercise for the mind & slows down Alzheimer's
http://ping.fm/tyBoz

2010-02-11T09:36:00.001Z

Ping.fm / Blog / Ping this! - Making Pinging Even Easier http://ping.fm/KLmSG

2010-02-11T09:27:00.001Z

Reorganised my pingfm networks so that they come here too. Using this tool I can update more than one social network at a time#TwitterEd

2010-02-11T09:05:00.001Z

read 10 secrets to lifelong learninghttp://ping.fm/8OruM TwitterEd

2010-02-09T18:03:00.001Z

testing out PingFM?

Power and Empowerment in Nursing: Looking Backward to Inform the Future

2010-01-28T23:00:00.000Z

Power and Empowerment in Nursing: Looking Backward to Inform the Future

Sainsbury Centre for Mental Health

2010-01-02T19:31:00.000Z

Sainsbury Centre for Mental Health
recent government documents available here

Notes on the Tension Between Privacy and Surveillance in Nursing

2009-12-20T11:14:00.000Z

Notes on the Tension Between Privacy and Surveillance in Nursing

test

2009-12-12T19:52:00.001Z

This is how easy it is to upload information to my blog – I could use it save important references / websites or just notes on what I have read/ seen?

Sinking and swimming: understanding Britain's unmet needs | The Young Foundation

2009-12-12T19:31:00.000Z

Sinking and swimming: understanding Britain's unmet needs The Young Foundation
an interesting report on how the changing social needs in Britain are impacting upon mental health

Across Mental Health: Recovery - the US perspective - Sainsbury Centre for Mental Health

2009-12-07T16:19:00.000Z

Across Mental Health: Recovery - the US perspective - Sainsbury Centre for Mental Health

full video lecture on implementing recovery in the US - I really like the living room idea;-)

One in Four - Side effects and the city

2009-10-28T10:24:00.000Z

One in Four - Side effects and the city

this is an interesting article about how people can get more involved in taking their medication

The Bertrand Russell Archives

2009-10-18T10:49:00.000+01:00

The Bertrand Russell Archives
Access to much of his work can be found here. Russell was a welsh philosopher who wrote about logic, politics and ethics

Aspen no. 5+6, item 3: Three Essays

2009-10-16T15:40:00.000+01:00

Aspen no. 5+6, item 3: Three Essays

Barthes - The death of the author article

Tohar

2009-10-08T09:24:00.000+01:00

Tohar

another paper this time on narrative analysis and the post structuralist Barthes

Narratives and Politics

2009-10-07T21:28:00.000+01:00

Trying to save a paper without having to go looking for it again that Adobe Reader will not let me save!

http://www.benjamins.com/jbp/series/NI/16-2/art/05who.pdf

Surveys on mental health services

2009-10-07T14:40:00.000+01:00

Surveys on mental health services

Care Quality Commission (CQC 2009) surveyed people's experiences of acute mental health care and the results were not brilliant with up to half of the 7000+ people surveyed saying that they did not have enough information on side effects or enough time talking to their nurse

Professor Hubert Dreyfus

2009-08-31T15:00:00.000+01:00

Professor Hubert Dreyfus

paper on Heidegger and Foucault on power

also free philosophy podcasts!

CPA Training Materials

2009-07-10T20:09:00.000+01:00

CPA Training Materials
Free to download Trainer's manual and student workbook!

Mid Staffordshire NHS Foundation Trust : Department of Health - Publications

2009-04-30T18:38:00.000+01:00

Mid Staffordshire NHS Foundation Trust : Department of Health - Publications

NHS Trusts must prove patient involvement - YES!

research in practice for Adults 2008 | Welcome

2009-04-27T14:02:00.000+01:00

research in practice for Adults 2008 Welcome

Making the Care Programme Approach work for you : Department of Health - Publications

2009-04-25T10:29:00.000+01:00

Making the Care Programme Approach work for you : Department of Health - Publications: "287065"

Real involvement: working with people to improve services : Department of Health - Publications

2009-04-14T15:40:00.000+01:00

Real involvement: working with people to improve services : Department of Health - Publications

Involve - Duty to Involve

2009-04-14T13:47:00.000+01:00

Involve - Duty to Involve
watch the video to see some of the issues

Centre for the Study of Education and Work | Research | OISE/UT

2009-04-14T11:34:00.000+01:00

Centre for the Study of Education and Work Research OISE/UT

Kathryn Church et al 2007 "Doing Disability at the Bank"

Mental Capital and well being project 2008

2009-01-16T09:48:00.000Z

Mental Capital and well being research looking at mental health suggests there we should have 5 a day activities for our mental health just like we should eat 5 a day fruit and veg for our physical health. click on link for access to webpage and full report

SCIE Position paper 03: Has service user participation made a difference to social care services?

2008-11-06T21:41:00.001Z

SCIE Position paper 03: Has service user participation made a difference to social care services?

2008-11-06T21:41:00.000Z

SCIE Position paper 03: Has service user participation made a difference to social care services?

Welsh Assembly Government | Adult Mental Health Services: Stronger in Partnership 2

2008-10-25T15:35:00.000+01:00

Welsh Assembly Government Adult Mental Health Services: Stronger in Partnership 2
latest guidance - not sure how different it is though?

Survey shows steady improvements in community mental health services

2008-09-15T09:19:00.000+01:00

Survey shows steady improvements in community mental health services

NHS Institute for Innovation and Improvement - Your experienced shared

2008-09-11T16:52:00.000+01:00

NHS Institute for Innovation and Improvement - Your experienced shared
experience based design (EBD)guidance now available - go to above link to register for a pack

Redressing the Balance

2008-08-19T13:11:00.000+01:00

Redressing the Balance (2006) -user involvement in the training of mental health nurses in wales
Miller L Mind Cymru

Mental Health Literacy

2008-08-12T12:52:00.000+01:00

Mental Health Literacy A canadian review

IAPO | Health Literacy | A global voice for patients

2008-08-08T17:24:00.000+01:00

IAPO Health Literacy A global voice for patients
guidelines for involving people by providing information about their health needs

The NHS Centre for Involvement

2008-07-24T15:01:00.000+01:00

The NHS Centre for Involvement

Lancashire Care Library and Information Service

2008-07-24T09:16:00.000+01:00

Lancashire Care Library and Information Service
useful information/ reference links for all that can be subscribed to directly into your mailbox

Exploring the needs of service users involved in planning and delivering mental health services and education - Mini Project Summary — Portal

2008-07-13T11:59:00.000+01:00

Exploring the needs of service users involved in planning and delivering mental health services and education - Mini Project Summary — Portal

all my own work;-)

Communities in control: real people, real power - White Paper - Communities and neighbourhoods - Communities and Local Government

2008-07-13T11:25:00.000+01:00

Communities in control: real people, real power - White Paper - Communities and neighbourhoods - Communities and Local Government

although this paper focuses upon local issues - healthcare does not appear to feature in it anywhere!

Realising Recovery Learning Materials

2008-07-13T10:36:00.000+01:00

Realising Recovery Learning Materials

A Knock on the Duir

2008-06-01T11:24:00.000+01:00

A Knock on the Duir

Probably totally off track for many of you reading this but a favourite visit for me from time to time

Empowerment and Advocacy

2008-04-27T08:34:00.000+01:00

“It seems that the roadmap of information and good intentions is in place but in need of implementation”

WHO (2005) Empowerment and Mental Health Recovery. Briefing paper from the WHO European Ministerial Conference on Mental Health, Helsinki, 12–15 January 2005. Available at http://www.euro.who.int/document/MNH/ebrief05.pdf

Refocusing the care programme approach: Policy and positive practice guidance : Department of Health - Publications

2008-03-28T19:28:00.000Z

Refocusing the care programme approach: Policy and positive practice guidance : Department of Health - Publications

Making Recovery a Reality

2008-03-28T19:26:00.000Z

Latest research from Sainsbury Center for Mental Health

Making Recovery a Reality 2008

Sainsbury Centre for Mental Health

2008-03-28T19:22:00.000Z

Sainsbury Centre for Mental Health

New Website!

and publication on recovery

Workforce Development

2008-02-12T13:36:00.000Z

Engaging with Care A vision for the Health and Care workforce in England.

Dawson S, Slote Morris Z, Erikson W, Lister G Altringer B, Garside P, Craig M (2007) London. The Nuffield Trust.

The health service of the future will depend upon three levers of involvement or engagement

"The engaged consumer in a health system shaped by transactions between paid and
unpaid participants.

• The engaged worker in a health system shaped by leading engagement with those who
provide care, including informal and self-carers, as well as paid employees.

• The engaged citizen in a health system which minimises the causes of illness and maximises
wellbeing through fully engaging citizens and their communities". p11

"The self-image of the health professional as someone who intervenes to save the
patient in acute care has been replaced largely by an image of a guide for people with
long-term chronic care needs. Other values have shifted in response to changing technology.
For example, the ability to access and communicate knowledge is now more important than
memorising medical facts. These changes have required a substantial re-examination of the
training and continuing education of health and care workers". p14

Borderline : A Record Of Poor Treament

2008-01-31T21:14:00.000Z

Borderline : A Record Of Poor Treament

Mad World

2008-01-13T10:56:00.000Z

Mad World

Our NHS, our future » Lord Darzi’s blog

2008-01-10T21:33:00.000Z

Our NHS, our future » Lord Darzi’s blog

The Royal Liverpool Children's Inquiry

2008-01-08T10:39:00.000Z

The Royal Liverpool Children's Inquiry

Making User Invovement Work 2006

2007-12-26T18:56:00.000Z

Making user Involvement Work 2006
Joseph Rowntree Foundation research
126 service users
knowledge & networking key factors

Service User Involvement | Service user involvement

2007-12-26T18:44:00.000Z

Service User Involvement Service user involvement
Empowerment, Employabilty and Service User Involvement - literature review 2007

The NHS Centre for Involvement

2007-12-17T14:42:00.000Z

The NHS Centre for Involvement includes library for PPI

Social Care Institute for Excellence (SCIE) - Home page

2007-12-12T20:42:00.000Z

Social Care Institute for Excellence (SCIE) - Home page
for recent research on service user involvement in social care

Bristol Royal Infirmary Inquiry - HOME

2007-12-11T12:36:00.000Z

Bristol Royal Infirmary Inquiry - HOME
Investigation into children's cardiac services where there was a high number of deaths following surgery, made a number of recommendations to involve patients better and to improve communication and teamwork.

SURGE

2007-12-11T11:26:00.000Z

Service User Involvement
Service User Involvement (in research) Group England - link to information, best practice guidelines etc

Social Capital in Virtual Learning Communities and Distributed Communities of Practice

2007-12-10T11:51:00.000Z

Social Capital in Virtual Learning Communities and Distributed Communities of Practice A new concept ( to me) that explores the outcome of social capital on communities which consists of trust, shared learning and knowledge development

Raising the Standard NSF MH Wales

2007-11-29T17:59:00.000Z

p7
"users and their carers need to be integrally involved in the planning development and delivery of mental health services. This will require sustained support care and information form mental health services. Empowerment should be at all levels from self management to formal involvement in local and all wales planning. Those detained under the mental health legislation should be encouraged to participate actively and willingly in their own care".

Empowerment 1 0f 4 key principles of the strategy.

Mental Health Promotion in Wales

2007-11-29T17:50:00.000Z

Some information on "Health Literacy" and links to various other policies

Shaping Our Lives Network

2007-11-26T16:43:00.000Z

Shaping Our Lives Network

No Voice No Choice

2007-11-25T12:32:00.000Z

click on title for link to full report

Is the NHS becoming more Patient centered?

2007-11-25T12:21:00.000Z

From values to action: The Chief Nursing Officer's review of mental health nursing : Department of Health - Publications and statistics

2007-11-17T09:06:00.000Z

From values to action: The Chief Nursing Officer's review of mental health nursing : Department of Health - Publications and statistics

Learning and teaching about mental health in higher education. Good practice guides

2007-11-13T16:28:00.000Z

Learning and teaching about mental health in higher education. Good practice guides

mhhe website home page

2007-11-13T16:23:00.000Z

Mental Health in Higher Education is full of useful resources and links
mhhe website home page
Need to add this to my links page ;-)

Faculty of Health - Comensus Project - About Comensus

2007-11-12T15:35:00.000Z

Faculty of Health - Comensus Project - About Comensus

CEIMHtv

2007-11-12T15:31:00.000Z

Center of Excellence in Interdisciplinary Mental Health - CEIMH

University of Birmingham England UK

Video Resources Link CEIMHtv

NMC PPI Handbook

2007-11-12T15:20:00.000Z

NMC Internet link to the Good Practice Handbook for UK Healthcare Regulators (2007)

Service User Involvement (Mental Health)

Stories Make us Human

Lancashire Care Library

The economic argument for more mental health promotion

T-E-A-C-H Resource

The King's Fund

No Health Without Mental Health Strategy 2011

Health is Social Blog

Quality or Safety or both?

Service User Voice

Whose Story is it Anyway?

Can we guarantee compassionate care? - The King's Fund

Involving users in commissioning local services | Joseph Rowntree Foundation

Mental health - RCN

Emancipatory Practice and Lessons From Geese

National Empowerment Centre

The Triangle of Care

Oregon State Hospital Museum

sociology research journal online

The patient will see you now - The Health Foundation

BBC News - Concerns raised over psychiatric unit admissions

How to Celebrate midsummer | eHow.com

BBC News - Mental health research is 'incredibly underfunded'

Will graduate entry free nursing from the shackles of class and gender oppression? | Practice | Nursing Times

Mental Health Shop - 100 Ways to Support Recovery

Playing Asylum Seeker | Testimony

Outcomes Star named in White Paper - Outcomes Star - Outcomes Star

Ethics: The Ethics of Diversity: A Call for Intimate Listening in Thin Places

The vision of recovery today: what it is and what it means for services

Peer Support: What Makes It Unique?

Publications: An evaluation of mental health service user involvement in the reâ€commissioning of day and vocational services - Sainsbury Centre for Mental Health

Power and Empowerment in Nursing: Looking Backward to Inform the Future

Sainsbury Centre for Mental Health

Notes on the Tension Between Privacy and Surveillance in Nursing

test

Sinking and swimming: understanding Britain's unmet needs | The Young Foundation

Across Mental Health: Recovery - the US perspective - Sainsbury Centre for Mental Health

One in Four - Side effects and the city

The Bertrand Russell Archives

Aspen no. 5+6, item 3: Three Essays

Tohar

Narratives and Politics

Surveys on mental health services

Professor Hubert Dreyfus

CPA Training Materials

Mid Staffordshire NHS Foundation Trust : Department of Health - Publications

research in practice for Adults 2008 | Welcome

Making the Care Programme Approach work for you : Department of Health - Publications

Real involvement: working with people to improve services : Department of Health - Publications

Involve - Duty to Involve

Centre for the Study of Education and Work | Research | OISE/UT

Mental Capital and well being project 2008

SCIE Position paper 03: Has service user participation made a difference to social care services?

SCIE Position paper 03: Has service user participation made a difference to social care services?

Welsh Assembly Government | Adult Mental Health Services: Stronger in Partnership 2

Survey shows steady improvements in community mental health services

NHS Institute for Innovation and Improvement - Your experienced shared

Redressing the Balance

Mental Health Literacy

IAPO | Health Literacy | A global voice for patients

The NHS Centre for Involvement

Lancashire Care Library and Information Service

Exploring the needs of service users involved in planning and delivering mental health services and education - Mini Project Summary — Portal

Communities in control: real people, real power - White Paper - Communities and neighbourhoods - Communities and Local Government

Realising Recovery Learning Materials

A Knock on the Duir

Empowerment and Advocacy

Refocusing the care programme approach: Policy and positive practice guidance : Department of Health - Publications

Making Recovery a Reality

Sainsbury Centre for Mental Health

Workforce Development

Borderline : A Record Of Poor Treament

Mad World

Our NHS, our future » Lord Darzi’s blog

The Royal Liverpool Children's Inquiry

Making User Invovement Work 2006

Service User Involvement | Service user involvement

The NHS Centre for Involvement

Social Care Institute for Excellence (SCIE) - Home page

Bristol Royal Infirmary Inquiry - HOME

Publications: An evaluation of mental health service user involvement in the reâ€commissioning of day and vocational services - Sainsbury Centre for Mental Health